Policies

Privacy Policy

The Canadian PKU and Allied Disorders Inc. (CanPKU+) respects your privacy.

Please note that CanPKU+ maintains member/ participant/registration information for its own use and does not rent, sell or otherwise provide any identifying information to outsiders. 

We never sell, trade, or loan your information to any other organization.

We will use your information only for follow-up contacts (such as our newsletters), statistical purposes, and to process and recognize your donations and membership.

We disclose your information only to our own employees, volunteers and agents and only to accomplish the purpose listed above. 

CanPKU+ Policies:

As we  do from time to time, we are reviewing our policies and will update this section to those that apply to our membership. This will include a way to report any activities of concern. In the meantime, please utilize the feedback form if you have anything that we should know about. The mail will be received by the Vice President and COO.

Website Editor and Contents  Policy
Information to be posted in CanPKU+ website is submitted by our members, members of board, professionals or companies related to PKU and other metabolic disorders, the information is reviewed by the website team (CEO, VP, and Chair) and/or our medical advisor and if approved is published.