My Organization | Affliates

Affiliates

Over the years, CanPKU+ has become affiliated with and/or worked closely with several organizations. This networking allows us to be more informed about issues affecting IEM (Inborn Errors of Metabolism) families, and more effective in advocating for the needs of our community. Examples of these affiliations are below. If you are an organization that we have cooperated with in the past and want to be listed here, email us and let us know!

These are in no particular order.


Best Medicine Coalition	Med Access BC	Specialty Food Shop


National PKU Alliance - United States	Global Genes	National Foods


Rare Disease Day	NECPAD - New England Connection for PKU and Allied Disorders	Inform Rare


How Much Phe	Global Association for PKU (globalpku.org)	Cook for Love

Canadian Inherited Metabolic

Diseases Research Network

(CIMDRN)

PRA Health Sciences

Now part of ICON

CORD - Canadian Organization

Rare Disorders


M.A.G.I.C Clinic	RareX	MPS Society

In connection with the Government of Canada we were able to access a grant via Canadian Red Cross during COVID to buy devices for families and individuals to keep in touch

HCU Network America

CommuniKids